TransplantCheck

Where are you right now? · Step 7 of 9

Waiting list

“I keep my phone close, just in case.”

Illustrative patient words
Chapter 8 of the story: The call

What happens while I’m on the kidney transplant waiting list?

The Organ Procurement and Transplantation Network (OPTN) bases adult kidney waiting time on a qualifying kidney test date or the start of regular dialysis for kidney failure.1

OPTN policy says inactive kidney patients keep earning waiting time but do not get organ offers.1

Ask your transplant team to tell you your current status on the waiting list.2

When does my kidney waiting time start?

The Organ Procurement and Transplantation Network (OPTN) bases adult kidney waiting time on a qualifying kidney test date or the start of regular dialysis for kidney failure.1

As of October 2026, for people listed at age 18 or older, the test threshold is GFR or creatinine clearance of 20 mL/min or less, at listing or on a later date.1

Ask the center to show you which date it used. GFR means glomerular filtration rate; it is a measure of kidney function. Creatinine clearance is another measure of kidney function.

Does time on dialysis before I joined the kidney waiting list count?

Yes, regular dialysis for end-stage renal disease can count from before you joined the kidney waiting list.1

Ask your unit for the record of when regular dialysis for kidney failure began. Ask the center how it used that record.

What does “inactive” mean on the kidney transplant waiting list?

OPTN policy says inactive kidney patients keep earning waiting time but do not get organ offers.1

Ask why your status changed and what you need to do next.

How do I find out my status on the kidney transplant waiting list?

Ask your transplant team to tell you your current status on the waiting list.2

Ask if you are active and able to get offers. Ask for the answer in writing.

Can I move my kidney waiting time to another transplant center?

Yes, you can transfer waiting time after you register at the new program and complete the transfer process.1

OPTN requires a signed Wait Time Transfer Form, which one of the programs must submit.1

Can I be on the kidney transplant waiting list at more than one center?

What is the eGFR waiting-time correction for Black kidney patients?

The eGFR correction can restore waiting time for eligible Black kidney patients affected by a test calculation that used race.1

As of October 2026, the correction needs records of an eGFR above 20 mL/min that would have been 20 mL/min or less without race, and registration as Black or African American.1

eGFR means estimated glomerular filtration rate. Ask the center to review your old test records and explain its decision.

What do KDPI and EPTS mean when I get a kidney offer?

KDPI compares how long a donor kidney may work; EPTS compares how long a patient may benefit from a kidney transplant.3

KDPI stands for Kidney Donor Profile Index. EPTS stands for Estimated Post-Transplant Survival. Ask your team to explain what each score means for this offer.

What should my dialysis unit do while I wait for a kidney transplant?

Can I be taken off the kidney transplant waiting list, and what can I do?

Yes, a center can remove you from the waiting list and must notify you in writing.1

Ask for the reason and what options you have. Ask if another center could assess you.

Questions to bring to your team

  • What is my current status?
  • What start date is in my record?
  • What do I need to do to become active?
  • Do you need my old test records?
  • How would a transfer work?
  • Who should I call with a change?
Sources
  1. HRSA / OPTN. OPTN Policies Effective as of October 1, 2026. Policy 8.3.A, printed page 151. Policy 3.6.A and Table 3-3: Kidney — Unlimited time, printed page 47. Policy 8.3.A(1–2), printed page 151. Policy 8.3.A(3), printed page 151. Policy 3.6.C, printed page 49. Policy 3.4.F, printed page 46. Policy 3.7.D.i–iii, printed pages 52–53. Policy 3.7.D.ii, printed page 53. Policy 3.5, Table 3-2, printed page 47. Checked November 1, 2026.
  2. SRTR. Getting Listed. Kidney: How can I find out where I am on the waiting list? Checked November 1, 2026.
  3. HRSA / OPTN. Kidney Allocation System FAQs. How are kidneys and candidates classified? Checked October 30, 2026.
  4. eCFR. § 494.90 Condition: Patient plan of care. 42 CFR 494.90(c)(1–2). Checked October 30, 2026.
Page facts

Written by the TransplantCheck team.

Facts checked against official sources between October 30 and November 1, 2026.

Changes

  • October 30, 2026: first version.
  • November 2, 2026: became step 7, with the waiting list answer from The kidney care journey.